Wednesday, December 19, 2007

WAITING & HOPING...

There is not much to tell you....Mr. T and I have been going for bi-monthly appointments at the Children's Hospital for his phlebotomy treatments. This is the treatment used to remove iron from the blood. They tell us that the treatment is going well...they hope that by January he will no longer need them. It appears that the treatment is working....the amount of iron in his blood has been returning to normal...so that's something to look forward to.

As for the bloodwork.....his readings have been going down as well...very 'slowly'...but gradually...which means his platelets are 50*...normal is in the range of 150-450........and his neutro-polys are 1.75* and normal is 1.8-8.0...........so you can see they are lower than normal.
Mr. T. feels good....he is looking forward to Christmas.......even though his immune system is taking a beating.....he has the perpetual cough...but no fever.....he has to use his puffer every day....no exertion...no shoveling? no vacuuming?? but he sure can reach for the cookie jar!!
We are patiently waiting for a bone marrow match. As you know...Mr. T's name is in the bone marrow registry......this is a world-wide registry....and I have faith that they will find a bone marrow match very soon.


Unfortunately....his biological dad was not a match....I've been told that 70% of biological parents aren't a match......and that's why we have a registry.
Hopefully.....Mr. T. will find a match in the New Year! That's my Christmas Wish!

Right now...Mr. T. is not thinking about that at all......he's hoping that Santa brings him Guitar Hero 3 for Christmas.....and Nanny is hoping she gets 'earplugs'!!
Let's pray that Nanny gets her wish and Mr. T as well!