They gave Mr. T his last chemo for this week around 11 a.m....and right away he got much worse. He started getting chest pain...his oxygen dropped so he needed an oxygen mask, temperature skyrocketed to 40.9 and his blood pressure dropped really low. Right away they moved out the other child in his room and isolated him. The SPOT team rushed in....and started doing tests on him....checking his heart and oxygen and doing more culture's.
For 2 hours we had a team in the room....checking everything and finally they did x-rays of his chest and stomach. All they can give him for the fever is Tylenol but only every 4 hours. Now he has diarrhea as well.
Because he hasn't eaten in more than 24 hrs...he's puking up bile. They sent his culture's to the lab...then they gave him blood transfusions as his hemoglobin is too low.
The tylenol helps a little....his temperature goes down to 39.7 and within the hour its back up to 40....and we have to wait for 4 hrs for more Tylenol.
He has so many bags attached to him...he's getting bolus's..and antibiotics like Vancomycin which they have to watch carefully so that he doesn't get renal failure....oh boy...he is in such misery.
He'll have the chills and minutes later..he'll be burning up. I've never seen his temperature go up to 40.9...ever. This is a 1st.
They say the fevers are the cause of the chemo....the 'cytarabine'...but I'm thinking that maybe his counts were too low to start the 2nd cycle of chemo...but what do I know?
They are giving him everything they can for the nausea....Gravol...they're pushing it into his line...they give him Benadryl and Odanestron....and still, nothing seems to help.
The SPOT team will be back later to check on him.
He was just raving while he was wide awake....talking about dangerous snakes, duels and asking for ketchup. I know that's because of the fevers........and now they tell me that it takes a couple of DAYS for the antibiotics to work! I was hoping the fevers would break real soon so we all could get some sleep!
Mr. T asked me if he was going to die.......and I told him....'No...don't plan on it...you've got a lot of living to do yet...tomorrow will be a better day...we just have to get through this, and we will!'.......That's a tough question to answer when you see him suffering so much.
Rubbing his back seems to help a bit, cold cloths on his forehead too when he's burning up....and warm blankets when he's freezing!
I know that God will get him through this ordeal....I just don't understand why kids have to suffer!
So many people out there are 'living to die' and these kids are 'dying to live'! Where's the justice?
I hope Mr. T has a good night and a better day tomorrow....his Birthday!
3 comments:
Hang in, both of you, prayers with you, sending you every positive thought and all my energy. You are still keeping your eye on the goal, on the future, keep seeing it.
I so hope today, May 25th, is a better day for Tayten, and that he can visualize himself at his belated pool party celebrating today, his 13th birthday, in a big way then.
Happy Birthday, Tayten!
One more day down in your fight, relaxation is coming....
Happy Birthday, Taten! I'm thinking about you every day. Hang in there, buddy. You've got friends with you all the way.
Hang in there Bud. Each day will get you a little closer to getting better. You may not feel like it now, but you are strong and you can do this.
Hope you feel better for your birthday.
Jennifer
Post a Comment