I haven't been able to post all week! We were sent to Ronald Mcdonald House because there is a shortage of beds....and Mr. T's counts are not high enough to start his 2nd cycle of chemo....but his counts are too low to go home for a break. His neutro-polys are up to 0.38* and they need to be 1.00* in order to start the 2nd round of chemo.
There is a lot of construction going on at Ronald Mcdonald House...they are putting in all new heaters and air-conditioners in the rooms...so the internet is down.
It is boring for Tayten here...as there is no kids his age to play with...so his days are spent playing games or watching television by himself.
He still walks over to Cheo for school....and for blood work and to see the endocrinologist. We haven't had much good news there.
Mr. T is now DIABETIC. His triglycerides should be between 0.4 - 1.4 and they are 17.69....and no that is not a typo. That number is way over the top. Friday we spent all afternoon with the endocrinologist, a diabetic nurse and a diabetic dietician. Mr. T now has a OneStep glucose meter to check his blood twice a day. He was shown how to do it himself so he could take part in monitoring his own blood sugars. He checks his blood 1st thing in the morning and before supper and enters the number into a book. Also he is on Metformin and another medication to adjust his blood sugars....as well as a special diet which he's not too happy about.
All these problems stem from his immune system which is compromised. We're hoping that with medication and diet we can get his blood sugars under control.
Mr. T hasn't complained about no pop drinks....as long as he can have Crystal Lite in his water...he's okay with that.
We have to watch the fat content and sugars in all his food...which means reading Labels constantly. Also we have to watch portion control! That doesn't make for a very 'happy camper'.
He hasn't complained about switching to brown bread, or having 2 strips of turkey bacon instead of the real thing...but he does miss chips and icecream. There is a no-sugar icecream available but its high in fat. This week I will go to Loblaw's and check out their diabetic section and try t0 make his diet a little more fun. I know they do have diabetic jams and cookie's. Now if only someone can come up with diabetic chips...life would be grand!
Sunday, May 18, 2008
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